The presentation has two parts. The first contains an update on lupus including information on disease pathogenesis, therapies, and importance of clinical trials for improving therapeutic strategies. The second discusses culturally competent communication, past abuses of research patients, current protections for research patients, informed consent, and strategies for discussing clinical research including referral to research centers.
Learning Objectives:
  • Apply techniques to empower patients to participate in clinical trials
  • Define the importance of minority involvement in clinical trials
  • Identify cultural aspects of trial participation
  • Summarize “two-way” listening skills between the patient and clinician
  • Describe how minorities are disproportionately affected by autoimmune diseases such as lupus